Side Selfies and Word Porn

The Internet is the gift that keeps on giving.  Lolcatz and Grumpy Cats, the home of Chuck Norris facts. Challenges involving cinnamon and ice buckets, dubious dance moves of the dabbing and flossing variety.

In addition to the memes and the challenges — and the dances banned from my house — the World Wide Web also provides us with a global community where we can share our experiences with chronic illness. It’s an isolating experience where our friends and family don’t quite understand (as much as they try), however international strangers can support you in a virtual intimacy that is hard to replicate in our everyday reality.

Our social media groups are not for the fainthearted.  Administrators pop into threads exclaiming ‘Gentle reminder, we aren’t medical professionals!’ while we all plough on comparing lumps and bumps, pulling back eyelids to show the latest uveitis flare, rashes and bruises around injection sites. Ankles spill over trainers and kneecaps are lost in swollen joints. TMI warnings reserved only for boobs, bums and nudie time dysfunction.

A common sight is the side on selfie, or the written post equivalent. This is when a Spoonie is at breaking point, comments are of the ‘gentle hugs’ variety, Snoopy is the current GIF du jour and we all lament together about our awful diseases. Suicide posts are common and members rally to find a poster’s location if our R U OK messages are unanswered.

 We follow The Mighty and recognise ourselves in the stories, hover our finger above the like option but don’t press, lest it sneaks into our newsfeed. We post questions in triplicate over different pages to increase visibility for answers but know deep down that we are all on the same sites and worry that we are boring even each other.  Some days our news feeds feel like a cacophony of pain, dotted with WordPorn quotes and the occasional ironic meme.

But some days, rare days, we will have a post from someone that has stood up and said no.  Charis Hill returning to Burning Man and Kylie Frost running in a marathon. Em Carey’s Instagram is enough for me to consider brushing off the kit kat crumbs and heading to the beach.

Em Carey

em_carey Instagram

My intention for this blog is to bring a little bit of light to our corner of the web by sharing these stories and hopefully emulating their drive and perseverance on my own journey. I hope to offer you all the same inspiration they offer me and some laughs on the way.

Feel free to share your own inspirations in the socials.

MJ (3)

 

3 thoughts on “Side Selfies and Word Porn

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